Brandy's Braces, SARPE, Jaw Surgery Journal

This is my daily journal to my eventual perfect smile and Apnea free life. It logs my surgeries, and daily progress.

Wednesday, November 15, 2006

Why Is it so hard to get Doctors to listen?

Ok...Today I'm feeling very frustrated! For about 4-5 months now something has been going on in my mouth (I mean other than my braces stuff etc) I had started having a yucky taste between a couple of my teeth awhile back, and a lot of burning in my front left incisor and canine. I originally went to my ortho about it, who told me I needed to go see my dentist. So, I did. He said he really didn't know what was wrong but that I needed to go see my endo (root canal specialist.) So I did then....he told me I needed a root canal, which I had done. During this time I had suspected that it really had nothing to do with my teeth, and everything to do with my palate expansion. I really felt I had a sinus infection, as I noticed that when I would make suction in my mouth I would feel stuff shoot through my sinuses and into my front teeth area. I asked my doctors about it, saying that I was really prone to sinusitus and that perhaps this was a sinus infection gone awry, or that maybe I had some kind of perferation due to the SARPE. I was told highly unlikely. During the time between seeing the dentist and endo for my root canal they had me on antibiotics. Saying the yucky taste between my tooth was coming from my bad tooth and once the root canal was done it should clear up. It started to get a bit better while I was one the Augmentin they perscribed but never quite went away.

So, I have the root canal done, the yucky taste doesn't go away, but gets worse. NO one has taken any pictures of my palate at all since having the SARPE done. I again said to my ortho, and OS, that I don't think it has anything to do with my teeth. So knowing how my body behaves with a sinus infection I decided to consult my Ear Nose and Throat doctor. It was a few days before I could get in, so I went to "First Care" and told the doctor my symptoms and that I was pretty sure I had a sinus infection. I told him I took Augmentin for 14 days recently and it got a bit better but then came back. He put me on Bioxin for 14 days.

Monday I went to my ENT....and guess what? They are just about positive that I have a sinus infection of some sort. Within two days of beingon the Bioxin the yucky taste between my teeth has gone away. They have me using nasalcort to shrink my nasal turbinates and allow things to drain, Mucinex to loosen all the secrections up, and of course the Bioxin. They said that it is not uncommon at all for some people to have sinuses that run very close to the roots of ones teeth, and given the type of surgery I had, I could very well have a (fistula) or perferation in my sinus lining or wall that would allow the infection to leach out through an area of my gums or teeth (which is exactly what I had asked all of my other doctors about previously.) My ENT wants to do a full CT scan next Friday after 2 weeks on the meds and see what we can figure out. Things are slowly starting to improve, but I still have a lot of sinus pressure and burning in my front teeth. I have been dealing with this for over 5 months now, and by the time I went to First Care the other day, I was so sick to my stomach with nausea that I could barely walk. This was the final straw for me that it was truly sinus related, as I always get incredibly tired and nauseous when I have one.

Why do doctors just blow people off or give them the run around? I mean I realize that some people are hypochondriacs, but most are not, and probably know their bodies far better then a doctor gives them credit for. At any rate it is just aggravating...mostly I'm pissed that no one has offered to take X-rays not even my oral surgeon who did the freakin surgery! I have to go to a totally separate doctor and request them! Don't you think that is sorta messed up?


  • At 3:28 PM, Blogger Graham said…

    Well I give you full kudos for taking charge of your own health, I can sympathize with the frustration. You seem to have a very intuitive sense of what's going on. I do think that more people should be proactive about their health and do some personal research. Unfortunately in too many instances this is a requirement to get the right treatment. It just seems to be the way things are these days. So anyway, I hope you heal up quickly. Not fun!

  • At 4:43 PM, Blogger Brandyleigh35 said…

    Thanks Graham,
    Yeah I know my body pretty well. I can't tell you how many times I have gone to the doctor and taken matters into my own hands. Even when I had my mandibular advancement device made for my sleep apnea, I pretty much orchestrated the whole thing. I did the research, talked to the labs, and basically gave my doctor all the info for what I wanted. All he had to do was order it for me. He had never even heard of the appliance I got (which at the time was the latest and greatest) so he was like totally learning about it from me. He later added it to his practice, but I was just amazed at how uninformed he was. I wonder what I might have ended up with had I not done my research. It really is rather frightening to me....I mean, sometimes I feel like I know more than my doctors do.

  • At 5:35 AM, Blogger Mary said…

    Hi Brandy, I totally feel your frustration. It seems like ultimately its up to us personally make sure our medical needs are appropriately addressed. Doctors are so tunnel-visioned in their expertise and anything that deviates from what the KNOW, in my experience, they just don't acknowledge as existing. Like you, I'm usually very proactive and bring my research to my doctors. I'm glad you got to the bottom of the issue! M

  • At 9:56 PM, Blogger Mrs. Shanton said…

    Yeah, Brandy, I gotta give it to you. I mean, it's not uncommon for someone to have a sinus infection after dental surgery. Gee, you'd think that the fact you ASKED DIRECTLY about it would, you know, jog their brains a little bit.... Weird. And I'm a big defender of my homies in medical care. I do know that you have to be well-informed. I know it's difficult dealing with patients who THINK they're well-informed, and who don't want to bother with clinical evidence. People like that are SO frustrating to deal with. But you had some red flags going, in addition to your history. It's amazing how nonchalant some physicians are. I could never be a doctor. I worry about EVERYTHING!

  • At 9:46 AM, Blogger Brandyleigh35 said…

    Hey Steph,
    Don't get me wrong, I really like my doctors and have the utmost respect for all of them. I just find it rather strange that sinus infections are pretty common with palate surgery, and given my history all three of my doctors (the ortho, dentist, and endo specialist) never considered it. Even after I suggested it. Anyway...I'm so glad I went to my ENT as I'm feeling so much better now. My teeth aren't hurting anymore, I have no yucky taste in my mouth, I have some energy now, and the black circles that were under my eyes are finally clearing out too!

    I'm really not big into taking medicine at all, but sometimes, antibiotics are awesome! LOL...


  • At 5:52 PM, Blogger Mrs. Shanton said…

    Well, you're right, though. Doctors and nurses and pharmacists all need to LISTEN to patients more. I really agree with your main assertion.

  • At 1:24 AM, Anonymous Augmentin Side Effects said…

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